Home Sweet Hospital

Drew is back at his home away from home tonight - the hospital. This round of chemo was going so well and we had our hopes up that he would remain healthy. Friday he had another transfusion and we thought that would help his unpleasant demeanor. Unfortunately his new found crabbiness was for other reasons. He had come down with a bad cold and cough. This morning he had a temperature of 101.2, which meant back to the hospital. They have him on IV fluids and antibiotics. So far today he has been put through a urine sample, RSV test, chest x-rays and blood work. So far all tests have been negative. He is in isolation at the hospital. Let's just say it has been a very long day. He spent to bulk of his waking time crying. He looks and feels awful. He is crabby because he has to be contained. He cannot crawl on the floor, because there are too many germs. He can not leave the room, because he puts other cancer kids at risk. I have learned it is quite difficult to entertain a one year old on a hospital bed for long periods of time.

Tony came up to the hospital tonight to switch. Tony will spend tonight and tomorrow with him, and I will relieve Tony tomorrow night. Tony has a long night ahead of him. He is tired and burnt out. Unfortunately there is no break for us. Tony has been so wonderful through this entire process. He is the most amazing father. He gets up every night with Drew, singing and rocking in the middle of the night just to provide some comfort. I wish I could make this easier for him. Jack and Drew are so lucky to have him.

Jack came with to the hospital tonight. He didn't want to leave. He said he needed Daddy, Drew and Jack time. I feel so bad for him. On the way home he told me he's sick and needs to go to the hospital. He wants Chemo Crusader to fix his fever, so he needs to go back to the hospital. He is not sick, just missing his dad and brother. When we got home he said' "Mommy, I am worried about Drew's sick." I'm not sure if he understands want this means, but I think it is his way of expressing that he is scared. I wish I could make this easier for him.

Tomorrow is another day - One day closer to the end of this process. Each day brings it's challenges and rewards. At the end of the day, We are lucky to have been blessed with two wonderful children. Each day we thank God for them. We remind each one of them that We love them to the moon and back. Hang in there Buddy and Peanut, there are brighter days to come.