Today Drew had another
EUA. We hoped for the best, and prepared for the bad. It is hard to get to optimistic, because this is a marathon not a sprint. We did not get good news today, in fact rather tough news. Drew's tumor in his right eye grew. This was very disappointing news. Dr.
Christianson consulted with our former doctor (Dr. Olson) while Drew was under, and they felt the best course of action was to do a cut down treatment. I feel like we have come full circle. Just 1 1/2 years ago we were trying to make the best decision possible with so many
unknowns. Today was the same thing. We had to choose between radiation and freezing the tumor. Radiation increases the risk of secondary cancer and bone d
eterioration. The freezing was a 50/50 change the retina would detach causing temporary or permanent lose of his 20/20 vision in his right eye. With the help of the doctors we decided the lesser of two evils was the freezing of the tumors. Tony and I have cried a lot today. Dr.
Christianson said a prayer with us before he did the procedure and now it is in Gods hands. Here is what we know and don't know:
- They froze the tumor in Drew's good eye today. We do not know how the tumor will respond. Dr. Christianson indicated tumors usually respond well to this treatment.
- There is a 50% chance this procedure could cause the retina to detach. This could happen as early as tomorrow or anytime in the next three weeks. If this happens, Drew will lose all 20/20 vision for two to three months. He will still have his peripheral vision. There is a 95% after 2-3 months the retina will reattach and he will get his vision back.
- We will repeat the EUA one month from today. If the freezing did not cause the tumor to shrink, we will need to go to Phili or Atlanta for a radiation treatmentThis is about a 1 week procedure.
Please pray for this little boy. He needs it. We will continue to fight for him. We love him so much, and whatever happens this will never change. He will have the best life possible, and we will have peace in that.
3 comments:
Heidi & Tony,
My heart aches for all of you. The pain you feel in your hearts is very heavy. So is mine. I worry about Drewbug but I also feel heartache for you my daughter, Heidi and for you Tony, as you would say, my favorite son-in- law. I am glad that Dr. Peterson prayed with you guys. They say that the power of prayer is wonderful. They also say that the hardest fact is that when we pray we do not always get what we want. We pray that God will help us understand his reasoning for all of this. I do not totally understand that power, but many people I have talked with do. So, I pray that God will work miracles for Drew through the power of the Doctors. You are a very strong couple enduring a lot of hurt. You have been there before with good results. The road was not easy, but you did it. AND YOU WILL DO IT AGAIN. I am so proud of you guys. Your strength is a miracle in itself. That has to come from somewhere, right. I would give my life to change things for you guys but I know I can't. All I can do is be here to listen when you need it, to be there when you need my help and yes to pray. The road is long with many a winding turn. I love you guys. Never give up Hope. I will always be there for you guys and I stand by every decision you have to make and know that every one will be the right one.
All My Love
Mom
We are all praying for Drew. You
are doing a wonderful job with him
and you just have to believe everything will work out. I am
having a mass said for Drew at the
French Mission; so they can keep
on praying for him.
Take care and we love you.
Uncle Ron and Aunt Carol
Thanks :)
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