Wednesday, February 18, 2009

Old Tumor Grows In Drew's Good Eye

Not the best news today from the hospital. Dr. Christiansen found that one of the original tumors in Drew's right eye (the only one with substantial vision) revived itself. Quite honestly, Heidi and I were crushed......while we didn't want to get our hopes up prior to today, we did. We thought we had this disease in our rear view mirror but we don't. The main reason that this was so disheartening was that this particular tumor was one of originals, it's been through laser, freezing and 10 months of Chemo and it's back. Our treatment option for today was laser......so Dr. Christiansen hit it hard. We'll go back on March 21st to see how the tumor reacts and at that point we'll know more. Thankfully the tumor is still far from the center vision so it isn't impacting Drew's only vision in too much of a negative way. As far as what are our options, we don't know.....maybe the laser will work, maybe we'll be starting chemo over & maybe we'll be heading down a path that we haven't before, like radiation. One of the worst parts of this is the unknown. Don't worry we'll dust our selves off and march forward, we've come too far to not continue this fight. It was funny, tonight I was home with Drew while Heidi and Jack were up working out......I was talking with Drew and told him that the Dr. found a new bump today and asked him what he thought of that. He said, "I'm going to knock that bump right off!" And that was the only thing I needed to hear to move past the news from today and once again hit this thing head on.

On a happier note, last weekend Drew received a portion of his Make a Wish. Drew has always been enamored with Elmo's Firefighter. Well the good men and women of the St. Paul Fire Department showed up in great force on Sunday. They brought two trucks and blocked the street off for about an hour and a half. They let Drew, Jack and his cousins ride up in the bucket on the hook and ladder truck, let Drew sound the sirens, gave him a ride on the streets, let him shoot water from the hose and gave him a hat and firefighters badge. They were great....you couldn't ask for a nicer bunch of people. The time they spent was unbelievable...we can't thank them enough!

On Saturday we embark on the Make a Wish Disney Cruise. It couldn't come at a better time as Heidi and I feel the boys need a little spoiling right now, especially since we are unsure of our path in the coming months. We're all really looking forward to it! We'll post pictures as soon as we can.

Thanks again for your continued thoughts and prayers, we appreciate them all!








6 comments:

Anonymous said...

Hi Guys,

Sorry to hear about Drew. Go have
fun on your Disney Cruise; all of
you deserve it. You are in our
prayers everyday.
Love
Uncle Ron and Aunt Carol

Paula Heidgerken said...

Oh no- so sorry you guys... Hopefully your trip will provide you with some much needed fun and rest. My prayers are with you.

Paula H

Anonymous said...

Dang dang dang that stuborn old tumor! Sorry to hear it's acting up again but I'm sure you'll get it under control and your Rb "family" will be here for you through it all! Keep us posted on what we can do to help.

Have a GREAT time on your Disney Cruise - you ALL deserve it!

JoAnne Kroeker

Theresa said...

Hi Giulianis,

Ugh. What a bittersweet week this is. Know that we're thinking of you--envious and excited about the cruise. You're the most deserving family of such an amazing trip. It'll be a blast. Also, we're saddened yet hopeful about the tumor's regrowth. Your positive energy and words help all of the blog readers too.

-The Haider Family

Anonymous said...

Tony, Heidi, Jack and Drew, it deeply saddened us to hear the news after Drew apt this week. After reading the blog this moring and Drew's comment about knocking the new bump off is a true testiment to to Drew's strength to get over this next hudrle. Have a wondeful time on a much well deserved Disney Cruise with Jack and Drew.

We are thinking of you and you all are in our thoughts and prayers.

Love Uncle Joe, Aunt Rochelle, Josh and Luker

Anonymous said...

Hey guys,
I am so sorry to hear about the recent news. We didn't get good news either, Max's tumor is growing again also. It has been "dead" for over 8 months. Dr. Christiansen also lasered it and we are scheduled on March 21st also. We are not sure what his treatment will be either. I am now checking out options for going to New York, or Philly. Maybe we will see you on the 21st, if we don't go elesewhere first.
Take Care and have a great cruise!
Jessica Sloan
www.caringbridge.org/visit/maxsloan