Drew had a rough night, until they gave him some med's to knock him out. He slept hard, until about 6:30 this morning. I forgot how difficult it is for the parents to get sleep in the hospital. New technology is not always a good thing - the bed self adjusts to the weight pressure and shifts your weight throughout the night. Felt like it was vibrating all night. The nurses come in every 2-3 hours to do vitals. We are in a secured room with glass door, because of the radiation. It is like being in a glass bubble. When we cuddle with him, we have to lay a rubber/lead mat between us, so our radiation levels don't get to high.
Dr. Wilson can in at 7:00 this morning. Drew's eyes were matted shut and he was screaming "these fxxxing eyes are so stupid, they don't even open". Nice greeting for the doctor that is saving his life. Dr. Wilson got his eyes opened up, and Drew warmed up to him. By the end he was asking him to help him get the grease out of his eye. He has had his eyes open since. They are very sensitive to light, so we try to stay in dark areas of the hospital. Due to where they placed the plaque he does have some vision in his right eye. It is very blurry, but he seems to be managing to get around. I bought him presents to keep him entertained. Not so sure the nurses are happy about the ariplane that launches bubbles all over the room.
He just went to the gift shop to get another stuffed animal with Tony. That would bring the count to three new ones and we have only been here 1 1/2 days. He looks over those glasses, sticks his lower lips out, and says "Mommy and Daddy, right, you have to get me another stuffed animal because I can't see out of these stupid eyes." He is pretty good at the manipulation game. He can play me like a fiddle. I am pretty sure he will have about 50 new stuffed animals by the time we are home.
Dr. Wilson can in at 7:00 this morning. Drew's eyes were matted shut and he was screaming "these fxxxing eyes are so stupid, they don't even open". Nice greeting for the doctor that is saving his life. Dr. Wilson got his eyes opened up, and Drew warmed up to him. By the end he was asking him to help him get the grease out of his eye. He has had his eyes open since. They are very sensitive to light, so we try to stay in dark areas of the hospital. Due to where they placed the plaque he does have some vision in his right eye. It is very blurry, but he seems to be managing to get around. I bought him presents to keep him entertained. Not so sure the nurses are happy about the ariplane that launches bubbles all over the room.
He just went to the gift shop to get another stuffed animal with Tony. That would bring the count to three new ones and we have only been here 1 1/2 days. He looks over those glasses, sticks his lower lips out, and says "Mommy and Daddy, right, you have to get me another stuffed animal because I can't see out of these stupid eyes." He is pretty good at the manipulation game. He can play me like a fiddle. I am pretty sure he will have about 50 new stuffed animals by the time we are home.
4 comments:
Keep up the good work Drewbug. Papa and Grandma were happy to hear your voice today and YES we will buy you a present. Jack said that we could go shopping tonight so maybe he will find something for you, too. Be a good boy for mommy and daddy.
We love you to the moon and back
Hopefully Drew won't remember all of this someday! Hang in there, it is just as hard (or harder?) for mom & dad.
You are in our prayers!
Norelle & fam0122ily
Thinking and praying for you all. You are all very amazing and you will get through all of this -- as you have in the past although none of it is easy!!!! Lisa, Dave and family
Wow, at least they let Drew out of the room. When Max had his plaque we had to stay in the room the entire 4 days, it was a long 4 days. You are half way there!!!
Jessica Sloan
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