Drew went in for an eye exam today. It was a bit of a cluster, considering the scheduler mixed things up. We got up at 4 am to be to the hospital on time, and Dr. Christianson didn't show up until 9. His scheduler forgot he is not available until 9 on Fridays. They had to scramble to get an OR and MRI spot later in the day. No news on the MRI, and will not have it until next Friday. We are not expecting anything. The right eye looks good (yeah), nothing new to report there. The left eye is some slightly disappointing news. The tumor that sat in his 20/20 vision has always had a small spot on the end. Dr. Christianson thought it looked different today, he indicated a little more noticable. He is not sure if it was the angle of the camera or the lighting or something new growing. He will look again in February. We are less stressed with the left eye, since he has limited vision, therefore, more options.
Now for the disappointing news, Dr. Christianson is leaving the U of M. He has accepted a position as the Chair of the Department at Boston Mass. This is great for him, and sucks for us. They are looking for a replacement right now, and have a potential candidate who just moved to MN with experience. She (I think) has a private practice and is interested in continuing the work in RB. Wethey will find one soon, or we will be the traveling freak show. There is not another doctor in Minnesota, so off we will go to Dr. Olsen or Dr. Christainson. Say a little prayer that they get someone soon!
Now for the exciting news - The Make a Wish Foundation is granting Drew a Disney Cruise. We are starting to work out the details, but they are sending the entire family on a 4 night/5 Day cruise on Mickey's Boat to the Bahamas. The kids are super excited. They deserve this break for the craziness. Tony and I couldn't be happier for them. This is an opportunity for our family to get away and enjoy life for once. This is an amazing gift, nothing short of extrodinary. What a wonderful organization. We can't begin to repay them for this gift, but we are so grateful! We will share more details as they come.
Hope everyone is having a safe, healthy and happy holiday.
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I also have a family blog. Our website is simonesfamily.blogspot.com
Check it out! I will be sure to follow Drew's progress.
I am so excited for you all. That is gret! Take lots of pictures:)
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